Local support groups
There are a number of sarcoma support groups around the country and new ones starting up all the time. Sarcoma support groups provide valuable support and information to patients, carers and family members, and provide the opportunity to meet informally with other people in the same situation.
Most groups are run by patients and carers working together with local sarcoma clinical nurse specialists or doctors. Groups are usually fairly small and relaxed, and take place in venues such as cancer centres, hospitals, or community halls. The format of the meeting may include a talk from an invited speaker on a related topic, discussion and questions, informal chat with other group members, and refreshments. Some groups may organise social events and activities as well as regular meetings.
Local sarcoma support groups are run independently of Sarcoma UK. Whilst Sarcoma UK provides support and assistance to local groups, including advice on setting up new groups, the charityis not able to take responsibility for their activities, including any representational or campaigning activities they may undertake, information and advice they may give, and any other services they may provide.
Click on a region below to see support groups in your area.
East Midlands (and eastern counties)
Weds - Ground Floor Physio Gym in The Markus Centre, Royal Marsden Hospital, London SW3 6JJ. (NB: Easiest access to this department is via the Dovehouse Street entrance)
Thurs - The Seminar Room, RNHOT, Central London Outpatient Assessment Centre, 45 Bolsover Street, London W1W 5AQ
Newcastle and Tyneside
Contact: Cuth Earl, Group secretary, 0191 520 1824
North West Sarcoma Group
Lena Richards, Specialist Sarcoma Physiotherapist at the Christie, 0161 446 3795 or 0161 446 3000 (bleep 12539)
Ann Buchan, Sarcoma Clinical Nurse Specialist at the Christie, 0161 446 3094 or 0161 446 3000 (bleep 12906)
Helen Murray, Sarcoma Clinical Specialist Nurse at the MRI, 0161 276 6167 (Pager 07659 537596)
Maxine Cumbo, Specialist Sarcoma Physiotherapist at the MRI, 0161 701 0267 or 0161 276 1234 (bleep 1954)
Merseyside and Cheshire
Scotland - Glasgow
Dawn Currie, Sarcoma CNS, 0141 301 7599
Fiona Murdoch, Maggie's Centre, 0141 330 3311 (Mon-Tues) or 0141 357 2269 (Wed-Fri)
East Anglia Support Group
Next meeting: 22 February 2013
Contact: Tony Grover on 07941 434 351 or firstname.lastname@example.org
Oxford (inc Thames Valley, south and parts of south west England)
South of England
Bristol and South West England
Contact: Robert Oliver, 01392 406 151
Yorkshire and Humberside
Sheffield (and surrounding areas)
Contact: Maxine Eades, Clinical Support Nurse, email@example.com